All relevant data are within the paper and its Supporting Information files. Abstract Background Patient empowerment has gained considerable importance but uncertainty remains about the best way to define and measure it.
Epub Jan There is an increased attention to and demand for patient empowerment in cancer treatment and follow-up programs. Patient empowerment has been defined as feeling in control of or having mastery in relation to cancer and cancer care. This calls for properly developed questionnaires assessing empowerment from the user perspective.
The aim of this review was to identify questionnaires and subscales measuring empowerment and manifestations of empowerment among cancer patients. Empowerment and multiple search terms associated with empowerment were included. We included peer-reviewed articles published in English, which described questionnaires measuring empowerment or manifestations of empowerment in a cancer setting.
In addition, the questionnaire had to be a patient-reported outcome measure for adult cancer patients.
Database searches identified records. Title and abstract screening resulted in records being excluded. The remaining full text articles were retrieved and assessed for eligibility. This led to the inclusion of 33 individual instruments measuring empowerment and manifestations of empowerment.
Of these, only four were specifically developed to measure empowerment, and two were originally developed for the cancer setting, whereas the remaining two were developed elsewhere, but adapted to the cancer setting.
The other 29 questionnaires were not intended to measure the concept of empowerment, but focused on patient-centered care, patient competence, self-efficacy, etc. However, they were included because part of the instrument at least five items was considered to measure empowerment or manifestations of empowerment.
Our study provides an overview of the available questionnaires, which can be used by researchers and practitioners who wish to measure the concept of empowerment among cancer patients. Very few questionnaires were explicitly developed to explore empowerment, and the review brings to light a significant lack of questionnaires that measure patient empowerment comprehensively.Stigma and Health Journal.
Patrick Corrigan is now Editor-in-Chief of APA's new journal Stigma and Health. Stigma and Health publishes peer-reviewed, original research articles that may include tests of hypotheses about the form and impact of stigma, examination of strategies to decrease stigma's effects, and survey research capturing stigma in populations.
Capacity building (or capacity development) is the process by which individuals and organizations obtain, improve, and retain the skills, knowledge, tools, equipment and other resources needed to do their jobs competently or to a greater capacity (larger scale, larger audience, larger impact, etc).Capacity building and capacity development are often used interchangeably.
Inclusion and exclusion criteria. To qualify for inclusion the questionnaire had to be developed for, adapted to or used in cancer patients.
Furthermore, studies were included if they described a questionnaire that either explicitly investigated patient empowerment or, according to the conceptual definition used in this review, contained at least five items measuring empowerment manifestations.
Patient empowerment or involvement initiatives could include: Establishing a core support network for individual and organizational support including health-care workers, community leaders, champions of health care causes, patient advocates and advisers.
Questionnaire created for Studies on Women’s Empowerment, Position and Quality of Life in Poland and Eastern European, extended to. The National Standards for Community Engagement. The National Standards for Community Engagement are good-practice principles designed to support and inform the process of community engagement, and improve what happens as a result.